Below is an article from Hope magazine that shows some of the progress that Ysa has made based on the research coming out of the VHL community of researchers.
https://hope.childrenshospitalvanderbilt.org/the-era-of-precision-oncology/
My VHLA Walk Fundraising Page - William Engel
William Engel
William Engel
Did you know that VHL (von hippel-lindau) is a genetic disorder where patients develop tumors throughout their body their entire lifetime?
In October of 2019 my family learned that Ysa (my daughter) was a first in family impacted by VHL. Since then we have been very fortunate to be surrounded by compassion, information, and resources provided by the VHLA. Without the help of their amazing staff, we would not have learned how to care for our daughter and where we can get her treatment for the various manifestations of VHL. We owe them a debt of gratitude and I hope to pay it forward to another family in the future by helping raise funds and awareness today. Please help me in my mission by donating to this wonderful organization.
The money raised will support patients and their families and will fuel research efforts. VHL research has led to the development of 9 lifesaving drugs used to treat cancer and could someday lead to a cure for all cancers!
Together we can make a difference in the lives of those affected by VHL and possibly even cure cancer through VHL research!
Thank you for your generosity!
-William G. Engel
In October of 2019 my family learned that Ysa (my daughter) was a first in family impacted by VHL. Since then we have been very fortunate to be surrounded by compassion, information, and resources provided by the VHLA. Without the help of their amazing staff, we would not have learned how to care for our daughter and where we can get her treatment for the various manifestations of VHL. We owe them a debt of gratitude and I hope to pay it forward to another family in the future by helping raise funds and awareness today. Please help me in my mission by donating to this wonderful organization.
The money raised will support patients and their families and will fuel research efforts. VHL research has led to the development of 9 lifesaving drugs used to treat cancer and could someday lead to a cure for all cancers!
Together we can make a difference in the lives of those affected by VHL and possibly even cure cancer through VHL research!
Thank you for your generosity!
-William G. Engel
APR
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