Did you know that VHL (von hippel-lindau) is a genetic disorder where patients develop tumors throughout their body their entire lifetime?

My name is Tessa! I was diagnosed with VHL 23 years ago. Since then, I’ve had many major surgeries, countless scans, and many doctors appointments. That’s why funding VHL research is so important. I’ve seen the research in the VHL world has led to life changing outcomes for myself and my fellow warriors. I hope you will consider giving to continue this good work!


I have created this fundraiser to raise funds and awareness for VHL. The money raised will support patients and their families and will fuel research efforts. VHL research has led to the development of 9 lifesaving drugs used to treat cancer and could someday lead to a cure for all cancers!

Please support my fundraising goal by making a donation. Together we can make a difference in the lives of those affected by VHL and possibly even cure cancer through VHL research!

Thank you for your generosity!